I was recently published again on Sammiches and Psych Meds…. Please check it out: I Accidently Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile Son
Read more "I Accidentally Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile Son"The dad swoops in, whisking his son away from the playground. “We’d better get going!” Moments earlier, my then 2-year-old son had mustered up a weak “hello” for the boy after sticking his tongue out for a solid 30 seconds. It was his typical greeting at the time. My son’s voice is still weak from […]
Read more "Parent of One-in-a-Billion Boy Seeks Same"The rap sheet for all the stuff that’s happened to my son’s body is beginning to sound fictitious: multiple fractured femurs, pneumonia, lung failure, rodding surgeries, and more. My husband and I have spent an extraordinary amount of time in the hospital with him. While most people would rather experience a rapid succession of mouthburn […]
Read more "Top 5 Reasons Why I’m Super-Excited to Spend the Holidays in the Hospital"As a self-certified, part-time, mama blogger, I read all the stuff. I’m borderline obsessive with reading every single tiny thing out there that might have anything to do with children, or more specifically, rare genetic diseases. I may have even reached out to you (yes, you!) over the past year. And you probably ignored me. […]
Read more "The One Sentence Parents Need to Stop Saying"It seems as if everyone is a doctor these days. Thank you, internet! I am not a doctor. I haven’t even made it to season 4 of Grey’s Anatomy (yet). However, I have a son who attracts lots of attention from amateur doctors, people who think they know a thing or two about medical science. […]
Read more "Everyone’s A Doctor: The Best of the Worst Medical Advice We’ve Received"… Please! Thanks. Why I Don’t Fear For My Disabled Son
Read more "Check out my story on The Mid…"It’s hard to be a skinny baby. I mean, I don’t exactly know how a skinny baby must feel, because A) I wasn’t a skinny baby and B) I don’t even remember being a baby. But my son was a skinny baby. Having a rare chromosomal mutation meant his physical appearance was slightly different than […]
Read more "Please think of the skinny babies"Over the past three years, most of the updates on Branko and the current status of his health were plagued with negativity. It’s not like we wanted to make everyone we spoke to feel like a pile of garbage. Things were just really bad for awhile. Fast forward to Spring 2015, a.k.a., the time when […]
Read more "My son is getting better, but here’s why I’m terrified"My almost 4-year old son, Branko, has a sometimes scary chronic illness, and has had hospital stays anywhere between two and twenty-four days. I had never even been inside a children’s hospital until he was first diagnosed. I had never known anyone who had a kid with a chronic illness. I was a new mom […]
Read more "Hospital Stays and the Curse of the Chocolate Timbits"Oh my goodness, my little Nina is turning 1 very soon! Here she is: She wasn’t always this cute. Kidding! Of course she was always this cute, she is the cutest and happiest and best baby ever. I am hoping that if she sees this one day she will be able to appreciate the fact […]
Read more "Oh Nina! (aka Nina Las Vegas, Nina-nina-palachinka, Neeners)"
Mother of Bones 