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Parenting, Rare Disease, Jokes

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  • January: Everybody dies January 21, 2022
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genetic condition

I Accidentally Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile Son

I was recently published again on Sammiches and Psych Meds…. Please check it out: I Accidently Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile Son

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Parent of One-in-a-Billion Boy Seeks Same

The dad swoops in, whisking his son away from the playground. “We’d better get going!” Moments earlier, my then 2-year-old son had mustered up a weak “hello” for the boy after sticking his tongue out for a solid 30 seconds. It was his typical greeting at the time. My son’s voice is still weak from […]

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Everyone’s A Doctor: The Best of the Worst Medical Advice We’ve Received

It seems as if everyone is a doctor these days.  Thank you, internet! I am not a doctor. I haven’t even made it to season 4 of Grey’s Anatomy (yet). However, I have a son who attracts lots of attention from amateur doctors, people who think they know a thing or two about medical science. […]

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My son is getting better, but here’s why I’m terrified

Over the past three years, most of the updates on Branko and the current status of his health were plagued with negativity. It’s not like we wanted to make everyone we spoke to feel like a pile of garbage. Things were just really bad for awhile. Fast forward to Spring 2015, a.k.a., the time when […]

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Oh Nina! (aka Nina Las Vegas, Nina-nina-palachinka, Neeners)

Oh my goodness, my little Nina is turning 1 very soon! Here she is: She wasn’t always this cute. Kidding! Of course she was always this cute, she is the cutest and happiest and best baby ever. I am hoping that if she sees this one day she will be able to appreciate the fact […]

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First Hospital Visit; Our Health Care is the Shit

When Branko was about 3 months old, we noticed a bony growth on his rib. We weren’t concerned at all, but our pedeatrician wanted to do a chest x-ray, just in case. I remember taking Branko to the x-ray department at Sick Kids, all by myself, and not! even! worrying! for one second. Nothing could […]

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